Monday, July 13, 2015

A few observations

Some random thoughts as we approach next Monday.

Seizures are banging away.  Julia is having them almost everyday.  Last night, she had one during the last few minutes of the church service, and then had another one on the way home.  Tonight, Julia was cleaning the kitchen and had a pretty hard seizure.  I think the only thing keeping her going right now is the hope that all of this might end soon.  And, since it is necessary for her to have seizures next week, we humorously look at this as good practice for the SEEG.

Part of the pre-op instructions are that Julia has to bathe with Dial soap the night before surgery.  I have had to answer an unreasonable number of questions about Dial soap and why she has to use it.  And not just from Julia.  You would think this was something really difficult!  Kind of like Naaman being told to go wash in the Jordan River.  Then the question was, can she bathe the morning of surgery instead of the night before?  I'm sure that will be okay.

And finally, an interesting insight.  Since Julia is going to have wires sticking out of her head for a few weeks, she has to have shirts that button up, rather than pull over her head.  If she had on a tee shirt, she would be wearing it for the next two weeks!  Unless we cut it off, I suppose.

Libby is still in Mobile taking care of her mother.  She is still wrestling through the emotions of whether her mom will ever get home or not, how to take care of her, how to take care of her dad, and now the added burden of leaving her to come up and take care of Julia.  This has been a difficult week, with her mom riding the rollercoaster of getting better / getting worse.  She and her sister had a good talk with the charge nurse, so they are hoping a few annoying issues can be resolved.

Kate is back in the United States, but not home yet.  She should be home tonight (from London) - I stand corrected.  As I wrote this line, Kate walked through the door.  So she is home safe and sound.

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