Sunday, August 23, 2015

Finally some success!

Sleep deprivation is starting to have its desired affect.  Julia stayed up to about 2:00 am on Friday night, and just after falling asleep, she had a good, hard seizure.  She called out to me and woke me up, so I was with her during the entire seizure.  Julia had only about 4 hours sleep Friday night.  We did not let her sleep at all Saturday, and I even inflicted upon her the terrible torture of reading her Geometry text to get caught up.  It must not have been too bad, since she finished it and had few questions for me.  Libby started working with her on an English phonics book - that might be enough to cause ME to have a seizure!  But it is very necessary for Julia to learn so she can spell in English.  Libby took over again on Saturday night, keeping Julia from sleeping again.  Julia had another seizure last night, and only had another 4 hours of sleep, so she is getting pretty fatigued.  We will try to keep her awake again today, so we can try to get a third seizure tonight.  If the neurologist is satisfied with those 3, they will then start a procedure in which they stimulate the brain and try to cause seizures "artificially", to help them hone in on the exact spot.  Kate, Laura and Virginia came up on Saturday afternoon to visit for a few hours.  That was an awful lot of girls in one little hospital room.  They had a challenge getting to Birmingham - they hit a rain storm so intense, it essentially stopped traffic on I-65 for about a half hour.  Eventually it passed, and they got moving again.

Within the Children's/UAB complex, there are all sorts of visually interesting things to distract the children from their illnesses.  I like this sculpture that is located between Children's and the UAB food court.


No comments:

Post a Comment