Friday, August 21, 2015

Waiting and waiting


It seems crazy to pray backwards from what we have been praying for the last two years, but we really need Julia's seizures to start up again.  She has now gone about a full week without a seizure!  She has not had any seizure medicine since Monday, and we are starting to sleep deprive her to see if that helps.  She got 5 hours sleep last night, and we are shooting for 4 hours tonight.  I (Andy) came back up to the hospital today, so Libby could have a break.  She has gone to Mary Beth's house to sleep in a real bed tonight, and get away from the noise and claustrophobia of the hospital room.

As you can see, Julia is able to get out of bed and walk around a little bit.  All the wires to her head are attached to the black bag she is carrying, and she has tubes connected to her legs to help her circulation while she is laying down all the time.  She is off of IVs right now, so we don't have to mess with those connections.  It appears the hospital IS starting to affect her fashion sense, however!




No comments:

Post a Comment