Wednesday, August 12, 2015

Here we go . . .

After months of waiting, we are finally at the starting line.  Actually, we are at two starting lines.  Tomorrow is Julia's first day of school.  She will get exactly two days of school in, before we interrupt this year with her surgeries.  She will start school tomorrow at 8:00 am, and I will remove her from school at 11:00 am and run up to Birmingham for her pre-op meeting.  We have a good list of questions to go through, and I'm sure they will have a host of information (and forms to sign) for us.  We are going to try to have a high-tech meeting.  Libby is down in Grand Bay with her Dad, as he continues his chemo-therapy.  We are going to try to conference call her in to our meetings, so she can participate just as if she were with us.  Hopefully this will work.  This will be Libby's last week with him, since on Monday, Julia will have the SEEG begun and Libby will stay with her the entire time she is in Birmingham.  Julia has all of her school books already, and we are hoping she can keep up while she is in the hospital, but it is likely she will be having an increased frequency and intensity of seizures, which always muddles her cognitive skills, so we will see.  After we are done with the Pre-op work, we hope to go by and see where Sam and MB and kids live now.  We are both excited about the possibilities, and nervous about the surgeries.  We are praying for the miraculous - that Julia can be relieved of the life-long burden of constant seizures.

No comments:

Post a Comment